I read over the material that the specialist gave us when DJ was diagnosed with encopresis caused by chronic constipation. We are still awaiting results from his stool samples in order to determine if his daily dose of penicillin is causing the constipation issue, or if it is caused by DJ's special placement of his "plumbing system", or if it is caused by scar tissue from his previous intestine surgery.
Taking my cues from the handout we got from the specialist and all of your wonderful suggestions we came up with three new ways for DJ to achieve the stars and points needed to get his own camera:
- Take his new medicine without complaint - this is a big one since it is like drinking salt water!
- Log/inform Mommy or Daddy of a BM (accident or successfully done in toilet) AND always try the potty when Mommy or Daddy ask - this is because the doctor wants him to try regularly and for us to fill in a chart with all the details, so his help is appreciated.
- Make an attempt to make it to the toilet, or at least tell us of an accident and not hide it - this is key to the charts we have to fill out and the hiding or ignoring the accident is a big thing with DJ.
They are all still toilet-related, but we think they all are achievable. With the old chart he was at least 12 days away from getting enough points for a camera...now, he could easily get it in 3 or 4 days.
Thank you everyone. I so appreciate your support.
When you look at DJ, you would never think that he is so medically special and that his insides are so very unique. And there are times when I forget that he has a serious, often life-threatening syndrome. I never stop thinking of the other families I have "met" who are dealing with tragic, sad and painful medical issues related to heterotaxy. We are lucky. DJ is lucky...let's hope he stays lucky and this issue passes....pun intended!!!
So now, I am looking for high fiber kid-tested recipes. I have already started to add psyllium and ground flex seed. Any suggestions would be appreciated!
DJ is on PEG 3350 till September and at that time we will re-do all the tests and decide if further intervention or tests may be needed.
Thanks everyone for your wonderful support.